Hi! Praying you are able to find someone to help… Would you mind to share how you were diagnosed? I had one endocrinologist grab the under part of my arms, compare the feeling of them to “beanie baby granules” and declare I had Dercum’s. She didn’t put it in my chart notes or anything, but she got real excited and told her student that was with her this was very rare… told me not to bother seeking treatment, but this was the cause of my chronic pain… no one else has confirmed the diagnosis l, but it has stayed in the back of my mind ever since…