Hi there, First of all I sympathize with what you and your daughter are going through. I'm still healing. however have come a long way in 8 months and I want you to know that hope is possible. She can get better. It's not a quick progress but I have come a LONG way and know she can too if she is dealing with CIRS.

To answer your question, I went on prednisone several of times while I was still undiagnosed. Personally I did not find any relief with this. While it may temporality lower the inflammation, it's not getting to the root cause and comes with many side effects.

As a first step, I would recommend finding a naturopath/functional doctor that specializes in CIRS. Next, work with them on testing to find out what exactly is going on internally (and perhaps externally) if she is dealing with mold. She could have the MTHFR gene that limits her detox capabilities. I grew terribly ill in an apartment with mold, however my partner was fine. Everyone is different. You can test your home using the ERMI swiffer sample.

If it's mold related, it's likely past infections have reactived from her weakened immune system. I had lyme when I was 11 years old that was dormant until I became ill. Treatment will be specific to her. This includes getting out of exposure (if mold related) opening drainage pathways (dry brushing, saunas, detox baths, movement.) Then introducing binders, herbs, and in some cases a 3-6 month dose of an antifungal if there is mold colonies within her body. Your functional doctor can help test for these things. Sadly, most of this is not covered by insurance however you can request the initial labs be done through quest/labcorp to help with some of the costs. Not all labs will be able to be done this way.

I'm simply sharing my experience and journey, however hers may be different. If you want to chat further 1:1 feel free to message me and I would be happy to connect. CIRS can be so isolating and challenging for the person affected and family/friends. You aren't alone and like I said, there is hope.

Hi. I was just browsing through here. Please do not just randomly take medication’s for this. You could have a severe reaction and in the meantime it won’t help. The treatment is super specific to each individual and there are steps that need to be taken we’re literally from what I understand, medication‘s are changed every 2 to 3 weeks and you have to deal with binders and things, need to be on a specific type of diet and throughout the entire detoxification your immune system will be fighting against you and apparently it is very difficult and I’ve heard some extreme words used to explain the steps of detox but I am looking for someone who will treat me before it’s too late.

Hi. I most definitely have CIRS and tested positive for an extremely high level of biotoxins. Within 24 hours of moving into a new apartment I became extremely sick! I have CRPS and was supposed to have a procedure two weeks after moving in they could have actually finally put me back to work and instead I am almost completely bedridden now. I did finally move out of there and I am suing because my dog is also dying. Any medication‘s that you take might temporarily help with symptoms and I would only take these medication‘s if there’s no long-term negative affects and they are helping you along the way but taking prednisone is dangerous. I had a severe reaction to prednisone and aged 50 years and six months. Devastated me!

Nothing is going to work until you detox. As far as I have known there is not a single doctor that will do the detox unless you pay cash. I have not found any that take insurance and being disabled my income is extremely low so I’m just guessing I’ll die like this. I really don’t know but it’s getting so much worse that I’m crying Every single day. I can’t believe that someone knowingly did this to me and did not care! Every one of my organs is inflamed and I definitely have brain damage. I can’t see anything without glasses because of the black mold. It’s disgusting that this is going on , knowingly. My life has been completely destroyed! There was no question whatsoever that there was mold. I questioned them about the odor before I moved in and they told me the air conditioner was musty because it hadn’t been run in a while and that I should run it on low 24/7 and there was black mold and other types of mold on an inside the air conditioner and they literally were having bricks removed from around the air conditioners on the outside of the building because of black mold but they were just lying to the tenants! There was mold everywhere! Absolutely everywhere! The pictures I have are disgusting and then there was a flood from two floors above me into my bedroom closet and they did nothing about it! They just keep moving new people into that unit since I’ve left. I’m trying to get the building condemned after I destroy them for what they’ve done to my dog and me!