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← Return to Tobramycin side effects
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MAC & Bronchiectasis | Last Active: Mar 6, 2023 | Replies (19)
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My Tobramycin arrived this morning and I nebulized it for the first time about three hours ago. My throat is a little scratchy feeling and I think I'm getting hoarse already.
Do y'all stay strictly on the 12 hour interval? If for any reason you neb earlier (but more than 6 hours) then you've changed the 12 hour time. What kind of schedule did you put yourselves on?
When I nebulize its: Duoneb/Budesonide/saline while in my SmartVest/ and Tobramycin for a chaser. I'm glad I'm retired...couldn't do this and hold down a job!
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I've been on inhaled Tobramycin since last July. I am on a two week on/off schedule, as prescribed by NJH. Dr. Griffith said that he prefers his patients to be on the off cycle for a shorter time so that the pseudomonas has less time to flourish.
The first couple of months I used Toby my throat got scratchy but not too bad. About November, I got hoarse and now pretty much lose my voice for most of the second week. It comes back pretty quickly as soon as I'm off. I went to an ENT who told me to try nebulizing 0.9% hypertonic saline after doing Toby to "rinse" my vocal cords, much the way a singer does to keep their throat moist. It appears to be helping.
My nebbing routine is levalbuterol, 7% saline, Toby, then 0.9% saline. My rhythm is 7:30 am and 4:30 pm. I can't seem to do the 12 hours aprt because I either sacrifice sleep or eating and I can't afford less of either of those.
I return to NJH in May. I am going to talk to Dr. Griffith about possibly trying another antibiotic that is less harsh on my vocal cords. The Toby is very effective, but I am concerned about long term damage to my voice.