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Is breast architectural distortion reason to panic?

Breast Cancer | Last Active: Sep 27, 2023 | Replies (33)

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@randy36

I hesitate to respond due to your already diagnosed condition with anxiety. I am not a doctor (but a retired RN of 36 yrs) I would like to share with you my associated story as I experienced a similar finding on a screening mammogram last May of 2022. My "layman's" understanding of architectural distortion and don't hold me to it is it describes a change in the tissue fiber of the breast that to some degree can be normal if it is not a significant amount of change from previous mammograms. My mammogram showed a borderline small amount of change from the previous year, almost imperceptible however the reading radiologist thank G-d leaned on the side of caution. The other factor is your age. Architectural distortion in postmenopausal women is statistically more significant in said population. I in fact did have breast cancer, multiple tumors throughout one breast, so small they were not perceptible on a mammogram. The blessing of this flagged mammogram for me was that my cancer was found in its early stages. Reflecting back, the fear and anxiety of the unknown were so much worse than the disease itself. I am now considered cancer free and finally getting back to living my life. I feel better than I have in years! My hope is that your f/u diagnostics are negative however if not, please know that you are going to survive and thrive. If cancer is found, it most is likely quite early. Every story is different, yet similar. Educate yourself. It decreases anxiety and empowers you from the initial shock of powerlessness. Please let me know how your sonogram goes. The amazing "sisterhood" will be here for you if needed. Don't hesitate to contact me if you have any questions or just need some support.

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Replies to "I hesitate to respond due to your already diagnosed condition with anxiety. I am not a..."

I was just diagnosed with architectural distortion. After 15 years of normal mammography’s, it showed up on my screening and I just went back for my follow up diagnostic/spot compression and u/s. The architectural distortion still remains on mammo but didn’t show on u/s. So the dr had the u/s tech tell me to come back in 6 months and that it’s nothing it’s just breast tissue. I only found out I still had distortion because I read the report. I’m thinking maybe I should get a second opinion. Waiting 6 months is just causing me so much anxiety. I waited two weeks for my follow up and that was torture. I’m also 54 and do have intermittent pain in the area of concern and my nipple also seems to inverted more than usual.