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Anyone have long term recovery?

Post-COVID Recovery & COVID-19 | Last Active: Mar 8, 2023 | Replies (31)

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@babsg1

Thank you for your hopeful words. I had Covid in Oct. 2021. Hospitalized, went home with 02 and thought: "ok I am home and I will be back to normal in a week." This is March 2023 and guess it's been 1 long week. I had been a runner and marathoner before I injured my back. I found new ways to stay fit at the YMCA, yoga, pilaties, weights, some low energy cardio classes. plus I have 2 wonderful small older dogs who love to walk. I no longer can do any of these things. I don't feel like myself and haven't since I contacted Covid. Fatigue, malaise, fog brain and other less annoying things. The fatigue and malaise are the worst for me. My PCP doesn't think there is long Covid and will not talk about it. I made appoint with another MD at the clinic and he told me the medicines I was taking were causing the fatigue.
I am in the process of changing PCP clinic. I am so grateful that I survived Covid. Many of the patients in the Covid ICU died before my discharge. I am trying to figure out how to live my life with no energy. All this time with hardly any energy. For example, I have gotten to a place in my life where I can meet a dear friend for coffee. After that I have to return home and take a very long nap. If I try to shop for groceries I have to ask my daughter for help taking groceries out of the car and into the house. I have so much fatigue and muscle ache.
Just recently I walked my dogs a block and a half. They were so excited to go out with me. Before Covid I was energetic, went to YMCA 5 days a week, gardened and worked on the grass, saw my friends. Did so many activities. Yes, I am 75 yet I look a young 60 and feel an old 90. I believe I will get better yet when? It is difficult to accept that I may never be and feel how I did before Covid. I did have the first 2 Covid vaccines before coming down with Covid. Now I am learning to try to pace mayself and accept my limits. Depression has been a problem for me since Covid. Most days I am not sure who I am anymore. I am happy for the individuals who have found hope and are moving on in their recovery. Maybe I am slowly moving on in recovery too yet cannot seem to recognize it?

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Replies to "Thank you for your hopeful words. I had Covid in Oct. 2021. Hospitalized, went home with..."

Hi @babsg1. I hope this comes across empathetic way intended. My daughter literally had to tell doctor that I was not the same person after dealing with post covid. I too was very active and did it all. A year out I still maneuver the same challenges of year ago and hope you can find ongoing posts as I have to “really pace and set realistic appreciative daily routines”. I personally experienced many providers who havnt had or been exposed to long covid patients to provide assistance for this very complex journey. I recently found myself so frustrated as realized I tried wearing a pendant that brought on terrible malaise. So I tried to give myself grace and be thankful I am at home safe surrounded by fond memories. I truly hope you can glean precious moments each day to lessen your stress and continue your healing journey the best way for you!🙂

Your story sounds a lot like mine. I’m 35 and was very active before and now I have less energy than my 82 year old sick grandma. Was running 5ks and now can’t make it down my driveway. I wish there was more discussion of the neurological issues that make it hard to be around people. Like you said about meeting a friend for coffee and then having to take a long nap. I can only be around 1-2 people at a time and it must be very quiet, and afterwards I’m totally trashed for days. I’m a very outgoing and social person so this has made my friends and family all feel very strange. Like, what kind of post-viral syndrome makes it so you have to live like a hermit because being around more than a few people at once, and maybe only once a month or so, puts you in bed? Reminds me of how Florence Nightengale was after she got the Crimean Flu.

I am in the same place. I had been in sports all of my life. I am trying anything that might help. I am looking for a support group in San Diego. I would refer in person.