Wow--thanks for asking!
On a practical level, radiation will be done at my local regional cancer center.
When I was 21 (and kind of a goof ball when it came to actual adult life) I had swine flu, pleurisy, empyema, and ended up in the ICU in Boston's Beth Israel for about 6 weeks. My poor parents were told I'd die. But an enterprising surgeon performed a thoracotomy cut and put me on antibiotics. By a miracle I lived--although hospitalized for many more months. This was in the 1970's--no respirator, no port, just an oxygen mask, pulmonary therapy by hand, and an IV hook up for 3+ months. This changed me forever. I became hyper aware of mortality. Sometimes I felt very alone--my concerns were different than my peers--but I kind of went on a lifelong quest to understand what it means to truly experience things. I dropped out of grad school, went to San Francisco, and married a man who was a Zen Buddhist priest, living in monasteries from time to time. He died at the age of 36 from an auto-immune disease. Paradoxically, at that point I really began to embrace life. I was raising our small daughter alone, and was re-united with my high school boyfriend, my first love. We've been married 25 years. I threw myself into the family, my work as a teacher and writer, exploring spirituality, and yes--fun fun fun. Which for me can be very simple, like gardening. Or very large, like philanthropy. I was disabled by the swine flu--chronic pain, weakness on right side, loss of lung capacity. So I learned to ONLY do what I care about. I've never had a television, for example. I worked for several decades at a local college and I'd try to make every day a little adventure, get to know everyone on campus, take little walks throughout the day...it worked well. So now at the age of 68 I have an entire lifetime built on accepting mortality, and managing physical problems. My spirituality is a combo of re-discovered Judaism and Buddhism--but frankly I think any approach would work. We live very simply--one car, mostly vegetarian, and I don't have a cell phone. I really care about my friends, grand daughter aged 4, my daughter's family. When I do 3 weeks of radiation I told my husband I want to hear live music every week and have a creative project around the experience. I've been beyond fortunate to understand time is limited. Thank you again--sorry for the length--just kept typing!
Best wishes,
You mentioned that you were at Boston Beth Israel when you were a kid. I’m at Bostons Dana Fabre, hospital #3, number #2 was Mass General, they wrote me off in September of last year so don’t give up.
I don’t think they new how to handle NET tumors. I’ve noticed that if a hospital doesn’t offer a certain treatment it’s like it doesn’t exist. Talk to a specialist.