Did you see the Invisible Project - https://uspainfoundation.org/invisible-project/

Hello David - Yes, there are many of us, on Mayo Connect and elsewhere who have "invisible" disabilities, and often feel forgotten or ignored.
In addition to chronic pain, I have a relatively rare lung disease called bronchiectasis, which makes it difficult to breathe well, makes me susceptible to a number of difficult to treat lung infections - and between the two, I often "hit the wall" and have to slow down or stop - even though I look perfectly fine, and may have felt fine a few hours ago.

Other invisible diseases that are often ignored include diabetes, heart disease, hearing loss, chronic leukemia or cancer, kidney disease, deafness... Many of us feel ignored, forgotten or discriminated against.

That is why this community is so important to me. I feel understood, I get support (or a nudge) when needed, I learn from others, and together we can learn to advocate for ourselves.

Have you ever considered looking into a comprehensive pain management program or clinic? It was not easy, and I had/have to do the work to live and progress, but it changed my life.
Sue