@ray210 and @nancykeenan I was diagnosed just over a year and a half ago. I see an mesentary specialist with Mayo, Dr. Conor Loftus in Rochester, MN. I live in Arizona and get all my tests done at Mayo in Scottsdale. He can then access the records on the patient portal. I recommend finding a specialist since this diagnosis is so rare most doctors are unaware of the best treatment or even the diagnosis. I saw a number of doctors, and had multiple ER visits, before finding my way to Mayo. Most critical things are to ensure you are hydrating appropriately every single day! Also, stress is a huge precipitator to a flare, so seriously decrease your stress levels. I take Miralax every day without fail. I then have 3 medications to take if I feel a flare coming on. I am a runner and find that I start to feel nauseous around mile 2-3, so I have a prescription for Ondansetron ODT which helps significantly. Exercise if you can. The items/foods that I have found to cause issues are dairy, spicy foods, alcohol, sugars and red meat. Good luck!