Hi @ajh5285 Mornings can be rough when we have cancer. I like your title of Morning Inventory…it brought flashbacks of my odyssey…making sure everything works when we get up!
Do you remember the sitcom, Frazier? One of his frequent comments was “Let’s see what fresh hell awaits today.” My husband and I used to laugh first thing in the morning when one of us would invariable say that because it seemed that each day brought new challenges, new or changing symptoms and surprises!
I’m happy to hear you’re at least finding some warmth while sleeping now. That’s just a good feeling all around. But yesterday you mentioned that there was more swelling in your feet and the ‘chemo feet’ feeling was worse. It’s interesting that it’s more pronounced now that you’re warmer. Wonder if the cold actually helped…
The ‘heavy legs’ and tightening of the ankles might be due to some edema (swelling) from water retention. Do you have any compression stockings? They’re really excellent for helping to prevent swelling in legs, keeping the blood flowing back to the heart and avoiding blood clots with long periods of sitting.
Also, elevate your legs for most of the day if you can. The more you can move around the more your blood will flow too, carrying some of that water away.
Do you have any coughing or breathing difficulties? Let your doctor know if you feel you are short of breath for any reason. It may be a signal that you’re retaining more water than usual.
I wish I could just give you a hug…of course your anxiety is through the roof right now! Tension headaches are a gift from all that stress.
One thing I have found that helps immediately is to take my right hand behind my head to the left side of the nape of my neck. Massage and rub just to the left of your spinal cord in that little hollow there as you lean into your massage. Then switch to the left hand behind your head, massaging the right side of the base of your skull leaning into the massage as you rub. That instantly releases the tightness of those muscles and lets the blood start flowing.
You can also massage the tight muscles behind your shoulders. I occasionally use a LaCrosse or tennis ball on my back…leaning onto a wall with the ball massaging my back for me.
Bio-freeze is another option for headaches. It’s an over the counter menthol-rub product that I use on my neck and base of my skull. It alleviates tension and headaches for me.
One more thing I’d like to give you is this link to a website using acupressure points. I see an acupuncturist to help me with my shoulders, neck and head. Because of my previous job and hobbies, those areas are chronic pain issues for me. Acupuncture works like magic for me. But when I’m not able to see my therapist, these acupressure points help tide me over. See if they work for you. https://www.medicalnewstoday.com/articles/326121#acupressure-points
How is your diet? Are you eating ok?
Thanks for all the suggestions.
Some of what you're doing sounds like myofascial release, which I have tried, and was temporally related to hematochezia which turned over the course of a day into a frank GI bleed that landed me in the hospital.
I have tried acupuncture and wasn't able to stay the course, although it was early on in the course of my illness. I hated the Chinese herbs and disliked intensely the fact that I was supposed to have faith in the acupuncturist, for the therapy to work (I suppose that's my western medical training at play screaming "placebo effect"). My only other experience with the therapy was for a horse that had a spinal cord injury. Again I was supposed to believe that the animal communicator thought it was working. It did not help the horse objectively, and eventually I had to have him euthanized. I might try giving your suggestion of acupressure a try, since I've seen a massage therapist for more than 2 decades, and she has been able over that time period to reduce the amount of tension I carry in my muscles as my baseline (as does my full brother). She has a wealth of knowledge in her own muscular system and brain acquired through more than 30 years of practice.