← Return to Axonal peripheral neuropathy: Finally, a diagnosis!

Discussion

Axonal peripheral neuropathy: Finally, a diagnosis!

Neuropathy | Last Active: Nov 3, 2023 | Replies (115)

Comment receiving replies
@thecatnthehat

Wow! I guess I shouldn't be amazed but I am. I am just like that- everything is visual because I can't tell otherwise and I'll fall down. I use my elbow on the wall of the shower and it's like a magic trick! Take my elbow off the wall, fall down. Keep my elbow touching the wall, everything is fine.

They're not telling you the endgame because they don't know. Nerves rupture and communication is lost and you lose control of the part they talked to you about. That could be a leg, or both. That could be organs. That could be your diaphragm and you can't breathe (that's common)... they don't have a way to know how or when.

Don't read this like doomsday prophecies... it could be a LONG time or a short time - just like anybody else... life is fragile and fleeting.

Jump to this post


Replies to "Wow! I guess I shouldn't be amazed but I am. I am just like that- everything..."

Just a suggestion on the shower comment - I have axonal polyneuropathy and balance is an issue in the shower. On Amazon, I found these grab bars that have terrific suction cups, 12 inches long - about $29 for pack of two and I have two in all showers and kept in suitcases. When we travel, these go with me. They are located under shower grab bars suction. These work well and anybody with balance issues should try these.