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Slow gi motility with severe constipation
Digestive Health | Last Active: Jan 19, 2024 | Replies (67)Comment receiving replies
I also have gastroparesis because of a neuromuscular condition, and I too struggle with constipation. Linzess gives me terrible cramping, and eventually diarrhea. I did try one called Motegrity that seemed to work a little better, but my insurance didn’t want to keep paying for it. If I don’t use a fleet enema every few days I literally don’t have a bm. I am interested in looking into a cecostony, but it seems to be more commonly done in pediatrics and I’m having trouble finding an adult provider who is familiar with it.
Replies to "I also have gastroparesis because of a neuromuscular condition, and I too struggle with constipation. Linzess..."
I have never posted in here before so hello! But I just had to post after I read your comment. For over 15 years I have suffered with colonic inertia that progressively got worse. Last summer, my colon finally stopped working and I couldn't have a BM on my own anymore so I had to start doing high volume enemas every other day. I finally found a GI doctor who would listen and take me seriously. She referred me to an awesome colorectal surgeon and we decided to do a total colectomy with IRA. I had that done on January 26 and am now 5 weeks post op. The decision to have that surgery was not an overnight decision. Lots of thought and prayers went into it. But I can say now that even though it was a very rough surgery and rough recovery, I am glad that I finally had it done. I can now have BMs on my own! I had no major complications after surgery and so far my recovery has been routine here at home. Anyway, just had to share. I know the pain of having a slow and non working colon. Pathology report came back on mine as non diseased and looked normal. It was just pretty much dead, non working. Hope this can help someone. 💗 And I hope that you can get the help you need as well.
I get my Moegrity from Canada. Three months worth for the same price as month in the US. It is the only thing I have tried so far that helps.
Because of reflux issues i decided instead of oil and vinegar on my salad, to just have olive oil. The next morning I had a bowel movement very comfortably. Didn't have salad again for a few days and had constipation issues. Made a salad with just olive oil. Next morning, bowel movement slid out. I would like to say it was the olive oil since it happened twice, but who knows? Worth a try.
I take magnesium at night and probiotics after meals. I also drink water with meals as well as inbeteen. Yes I have flare ups when I eat hard to digest foods or large meals.
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I suffered for almost 4 years.
Found a surgeon who did a Pyloroplasty on November 1 and I am so much better.
Linzess really made me cramp all day (was in bed a lot).
The Motegrity was even worse for me.