← Return to MBC What did you experience when 1st line treatment stopped working?

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@jbp

Emotionally I have been all over the place. I recently started seeing a counselor who works for the Cleveland Clinic oncology department and have found that helpful. I have trouble talking about it with my family because it just makes me cry, so it is a relief to get it out with someone who I'm not upsetting. I've also heard from some individuals who have been in treatment for stage 4 for several years and that is helpful, Tomorrow is my appointment so at this point I'm just hoping for the best

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Replies to "Emotionally I have been all over the place. I recently started seeing a counselor who works..."

I don’t as yet have as much experience with the treatment process, as I had to change from a new doctor who made fun of me and wouldn’t even look at my swollen foot when I tripped and hurt it. Regarding my breast cancer I had to star from part one again, because when I went to her she turned my problem over to a nurse practitioner [more later].

Hi there, so sorry to hear what you are dealing with! I am in the same boat as @mom23boys , diagnosed stage 4 de nova June 2020 at 54. First line of treatment stopped working after 19 months, the next two didn’t work but as of November 1 I am in a trial with a new med that so far has shrunk the lesions. Aside from 2-3 days feeling lousy the remaining 4 weeks each month I am living my life (almost) normally. Don’t lose hope there are many, many treatment options and new ones coming all the time. Also I agree with whoever said don’t let your tumour markers going up scare you, mine were normal when diagnosed stage 4 and went up later in treatment for an unknown reason and are now normal again. Stay strong, stay hopeful and know that you are not alone in the battle!!!