When I close my eyes, I lose all sense of balance. I need 3 point contact when washing my face at the sink or sudsing my hair in the shower. I can't look up at the stars without leaning against a stabile fence, post or companion. I don't know if I've lost a sock or shoe until I visually see it's not on my foot. I don't believe I can ever work in my darkroom again. Recently, while roaming the internet for information on Anti MAG Antibodies, I found there's a name for this lack of sensation. Sensory Ataxia. It is one of the symptoms of this disease. My neurologists never put or gave me the name for what I am experiencing. The first neurologist explained that if the book of neurology were a foot thick, what is currently known is about maybe 1/2" thick. I can't get a straight answer from them about how this disease will progress, so I can prepare for end of life issues. I guess they're trying to give me hope but, I still want to know.
I've read about the excruciating pain that comes with neuropathy but, I was told this is not part of my disease; one thing in my favor that I can be grateful for. However, I came across an article about neuropathy pain, specifically diabetic neuropathy. It may help other types of neuropathy but, it needs more study. Check this out:
https://medicalxpress.com/news/2023-02-spinal-cord-diabetic-neuropathy.html
I love that your doctor's are allowing you to keep riding your beautiful bike. The disability license plate is a hoot. Stay safe and good luck.