Idiopathic sensory and motor neuropathy. 52 YO male. Diagnosed w/sensory motor idiopathic neuropathy (N) at 51. Not diabetic. No known risks factors for N. 175lbs. Exercise regularly. Retrospectively, noticed onset of unusually sore feet & fleeting moments of tingling in feet about 3 yrs ago or so. Late 2021-early 2022, noticed onset of foot cramps on & off. April-May 2022, leg fasciculations emerged bilaterally in lower legs mainly. They continue. June or 2022, sensory symptoms (tingling, burning, vibrations, buzzing, waxing waning numbness) in feet & hands. Cramps in feet more than hands increased. Diagnosed by neurologist in July - August after clinical exams, extensive blood work (30 vials of blood over 3 settings), brain & spine MRIs, and EMG. Doc says he’s confident I do not have ALS & this is not a precursor to it. Hope he’s right! I have No UMN symptoms. Currently able to drive, work, walk, and live a decent quality of life with 600 mg Gabapentin. Pain & cramping always near but mostly managed for now. No significant weakness assuming I don’t linger on my feet/legs too long at once. No consistent numbness. No balance difficultly. Actually feel stronger waking than standing. Cramping and pain certainly worse on days I work versus days I’m off & can rest more. Praying I can make it to retirement age (57 for me) before becoming too disabled. Doc is confident I will do so. On this site, I see there are many forms of N. While all comments are welcome, I’m particularly interested in hearing from folks with N similar to mine, your story, effective management strategies, etc.
Like many on here, I lean on my faith & prayer along with GABA & family to cope currently. Prayers for all suffering with illness!