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DiscussionAxonal peripheral neuropathy: Finally, a diagnosis!
Neuropathy | Last Active: Nov 3, 2023 | Replies (115)Comment receiving replies
Replies to "I have Axonal Polyneuropathy and Anti MAG Antibodies. The neurologist is trying to treat the Anti..."
I have extreme pain and numbness and tingling in my extremities - mostly in my legs. Sections of my legs are foreign to me. I get no feedback from them and I have no idea where they are in space. Like as I lay here typing this I couldn't tell you if my feet are spread or not because I don't remember what position I put them in last. The pain ranges from crushing to burning sensation at an indescribable level. And this is coming from a guy who crashed a motorcycle breaking his femur into multiple pieces and twisting it onto the wrong side of his body. Grabbed the leg and put it back on the correct side. Spun around on the hill so feet were higher than heart. And dug into race leathers and found the cell phone to call for help. I know pain well. But I never knew this level of pain existed. It is relentless. It's is 24 hours a day. I can walk but no one knows how. I can ride my Superbike and they definitely can't explain that nor can I. I was told to keep riding as long as I can - with the additional statement of "I wouldn't normally tell someone to ride a motorcycle." I've attached an image of me from 1997 at the WERA Grand National Finals to explain why that was recommended.