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Esophageal junction outflow obstruction (EGJOO)
Digestive Health | Last Active: May 15, 2023 | Replies (21)Comment receiving replies
Hi , I also have EGJOO and Gastroparesis since April 2022 and lost 60 pounds. I am going to NYU Hospital in NYC ( Top 5 in the country) in May to ask for a Laproscopic Heller Myotomy(LHM) with fundoication for the GERD. I also have problems with too much GERD. Today I had breakfast and lunch - 1/2 chicken sandwich. I have bloating, acid, gas & nausea so bad I don’t want to eat, as it will make it worse. I am on Dexilant 60 mg, works about 60% of the time. Did you go to Mayo in Jacksonville? I hope they can help. I live in Punta Gorda, Fl and Mayo will not accept my United Healthcare Medicare Advantage Choice PPO., otherwise; I would have gone. Hope you find a solution I had Botox & dilation and it did not help, so I feel like surgery is the answer.
Replies to "Hi , I also have EGJOO and Gastroparesis since April 2022 and lost 60 pounds. I..."
Please keep me posted if anything has been successful. I left a comment today. I didn't want to do Botox because it is temporary and dilation did not work. Waiting to talk to my surgeon about options. I weigh 105lb and though I am only 5'1, I am usually 115lb.
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Hi, @flourface. Thanks for posting! I'll be seeing a surgeon soon to discuss surgical options as well as esophageal botox injections. Same here with the bloating, gas, and nausea. Dexilant did absolutely nothing to help me. I'm on the waiting list at Mayo Jacksonville. I'm in Orlando, so we're practically neighbors. I'm sorry to hear the botox didn't work for you. I had an endoscopy with balloon dilation about a month ago, and I'm not having as many occurrences of things stuck in my upper esophagus. Not perfect, but I'm happy for any little improvement. Take care, and please stay in touch! ( ＾◡＾)