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← Return to Tapering off of Prednisone
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Polymyalgia Rheumatica (PMR) | Last Active: Feb 28 5:49am | Replies (313)
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Your story is very interesting. It seems to confirm what I've seen from others with PMR: each person's story is unique and what works for one may not work for others. I do think that a slow taper is a good way to go for most people, and I'm trying that approach while I'm still in my first year of PMR. But, congratulations on finding a way to get off Prednisone after so many years taking it. Bravo to your rheumatologist and to you.
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Yes ... you are correct about doing a slow taper. The questions that nobody has ever found any answer to are the following:
How slow is too slow?
How fast is too fast?
How long is too long?
How long does PMR really last and when should I stop taking prednisone?
I don't think we as patients are entitled to know the answer to these questions. No matter how much I listened to my body, I have decided that I had no clue.
Sadly, I don't think doctors have much of a clue either. They at least have a license to give medical advice and prescribe medications.