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Tapering off of Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Feb 28 5:49am | Replies (313)

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@dadcue

Thank-you ... I will check out what ED582 has to say. To my knowledge, nobody on the other web site is a physician.

I have always been told to taper slowly so nothing new about that. My problem was I could never taper off prednisone no matter how slowly I went.

My doctors were very patient with me until they told me that I was too young to take prednisone for the rest of my life. I was 64 years old at the time so not that young.

I was diagnosed with PMR at the age of 52. More than 12 years on prednisone was an extremely long time to allow me to taper off. I didn't ever want to be on prednisone that long and my quality of life was getting more dismal with each additional year. I rather liked prednisone in the start of PMR for the fast pain relief.

Fortunately, a rheumatologist wanted to try a new approach but didn't offer me any guarantees that it would work. The new approach exceeded everyone's expectations including mine. I was able to taper off prednisone quickly. I went from 10 mg to 3 mg in 4 months. My rheumatologist wanted me to stop tapering at 3 mg. An endocrinologist helped me for an additional 4 months after I reached 3 mg and I eventually reached zero.

Not everything went according to a fixed plan because I needed to go back to 60 mg at one stage. Being off prednisone uncovered an old problem that had been dormant for 12 years. That problem wasn't expected at all. Fortunately, after some adjustments were made, I tapered off prednisone again. I went from 60 mg back to zero in less than a year the second time.

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Replies to "Thank-you ... I will check out what ED582 has to say. To my knowledge, nobody on..."

Your story is very interesting. It seems to confirm what I've seen from others with PMR: each person's story is unique and what works for one may not work for others. I do think that a slow taper is a good way to go for most people, and I'm trying that approach while I'm still in my first year of PMR. But, congratulations on finding a way to get off Prednisone after so many years taking it. Bravo to your rheumatologist and to you.