← Return to Xeloda for colon cancer - Scared about side effects and need support

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@leed2022

One more thing I forgot to mention. I have noticed that my eyes are very sensitive to light and sun, so I asked my oncologist about it and she said that is not a side effect of Xeloda. Not sure how that could be the case since I did not have this problem prior to treatment. Have you experienced that? Lee

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Replies to "One more thing I forgot to mention. I have noticed that my eyes are very sensitive..."

Hello Lee. Apologies for the delay in replying - too many celebrations this past week at having finished the chemo! We have both been following a similar pattern of treatment except yours is focused more on Xeloda over a longer term (6 months I think you said) perhaps because you're still working, whereas my combination of Oxaliplatin infusion + Xeloda seems more harsh over 3 months but has a similar benefit and gets it all over with more quickly, at the expense maybe of more side effects such as constipation. I now have a CT scan in a month's time and a follow up colonoscopy at a date to be arranged.
Re. diet, piling on the calories through switching to full cream milk, Greek yoghurt, more eggs and cheese, non-alcoholic beer and the occasional glass of red wine does seem to be working but should you have any spare do send them my way! Interesting that your experience was quite the opposite but I would prefer to put on weight by rebuilding muscles lost through lack of cycling / walking over the past 6 months rather than adding pure fat. I'm starting a 3 month gym course next week which should help and aim to get back on a bike too, albeit an e-bike.
Re. eyes, I'm sorry to hear of your sensitivity issue. I have noticed some sensitivity whilst driving at night time but that could be because I have not done much driving recently. Otherwise, no problems on that front.
I hope your treatment continues to be tolerable and I look forward to hearing more about your progress. Best wishes, Martin

Hello Lee. Greetings from the French Alps where I've been getting in some late season skiing, so there's life after colon surgery and chemo!
How is your treatment coming along?
Best wishes
Martin