← Return to Xeloda for colon cancer - Scared about side effects and need support

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@martin77

Hello Lee. Thanks for your update. I'm sorry to hear about your issue with weight gain on Xeloda as I have experienced quite the opposite! In fact I've been talking to a dietician about how to pile on the calories. I think the reason is that prior to my colon operation on 4 November to remove the tumour I was 100% fit and rode my bike 50 miles a week as well as lots of walking, which the surgeon said was really good news and aided my quick recovery. The reduction in leg, buttock and arm muscles since seems to be the cause of the weight loss but a health check recently indicated that my BMI was currently spot on (and produced a green smiley man on the health check screen which the health nurse said she hadn't seen for ages!). Despite this, I'm hoping to put on some weight once I get back on the bike again. In your case I hope the steps you're taking will result in weight loss, but I wouldn't worry too much about it - getting out for energetic walks with your dogs should help a lot.
It's countdown time for me! Only 6 more Xeloda pills to take, this evening and tomorrow morning, and the 366th pill will then have been consumed. The pattern over the 4 cycles of treatment have been similar - a tough first week after an infusion on day 1, an easier second and an almost normal third. Constipation / bloating / discomfort has been the main issue throughout which hopefully will now improve. I got signed off last night by my oncologist but will have a follow up CT scan in 6 weeks followed by a consultation with the surgeon. All being well, that's the end and life can continue.
Yes, it's great to see daffodils emerging here in the UK and we've had wonderful displays of snowdrops and aconites. The longer days are nice too and so those of us in the Northern Hemisphere all have a lot to look forward to! But let's hope this also brings peace for the poor people of Ukraine.
It's been so useful comparing experiences and I look forward to keeping in touch. I hope your subsequent cycles of treatment also go well. Best wishes. Martin

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Replies to "Hello Lee. Thanks for your update. I'm sorry to hear about your issue with weight gain..."

Wonderful News Martin! I am so happy that you have approached the end of your treatment cycles, and despite some of the side effects, can now get on with enjoying life and looking forward to great things. I do hope the weight gain happens soon. Did the dietician recommend anything i particular? Maybe just incorporating some of the higher calorie, yet health foods into your routine will help. All of the walking you are doing may be increasing your metabolism and burning up the calories much faster. I pray that your upcoming testing will have successful results, and please let me know how that goes once you get it all done. My oncologist said last week that I will most likely continue this cycle until August, and I suspect the reason for that is because I am only taking the Xeloda and no other treatments, which is the best plan for me, especially since I have t work. I will be getting a CT scan at that time, and then my next colonoscopy is a year from my surgery, which will be this November. I am so looking forward to getting through the rest of this, but trying to stay positive. Yes, I do need to get back to taking better care with my diet (as I was prior to the treatment and holidays), and also my walking routine. My sciatica has been an issue with the walking, so I am scheduled to have another steroid injection in my back (only takes a few minutes) late April, so I am looking forward to getting that done. Meanwhile, I am trying to watch what I eat more carefully. Will be thinking of you as you go through the next step, and will be sending positive energy your way. By the way, you are welcome to have some of my calories. Ha Ha. Warmest Wishes, Lee

One more thing I forgot to mention. I have noticed that my eyes are very sensitive to light and sun, so I asked my oncologist about it and she said that is not a side effect of Xeloda. Not sure how that could be the case since I did not have this problem prior to treatment. Have you experienced that? Lee