← Return to Sarcoidosis lesions of granulomas in their vertebrae bone marrow

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@shani

My docs suggested not taking medication for sarcoidosis , because it had side effects outweighing benefits. I know it may not sound empathetic where you stand now, but learn to manage pain using more holistic ways, keep busy with living positively and productively. I have amassed 5 autoimmune diseases now, raised two kids and worked full time since being diagnosed 40years ago. It wasn’t ever easy but the alternative was never an option, so just do it! I was blessed with supportive docs, friends and family. I’ve never regretted doing any of it.

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Replies to "My docs suggested not taking medication for sarcoidosis , because it had side effects outweighing benefits...."

I looked to see if I wrote this reply as it reflects my experience as well. Have had sarcoidosis since 1995 and have never taken medicine for it (with the exception of an occasional inhaler). Get exercise, maintain your weight, keep busy living.