Hi. Thank you for this info. I do research but find it overwhelming at times. I do not have pain at least thus far but I did try Lyrica for a while but it did nothing. I requested physical therapy to help with muscle weakness and gait issues which helped a great deal. Was sure I was going to be in a wheelchair the rate I was going. Now I use a cane on my weaker days and often use it more for security than actual support.
Am quite disappointed in my neurologist though she did thorough testing all that was discovered was MGUS which is being monitored and I am told by oncologist that it is NOT the cause of my neuropathy though neurologist said it could be. Searching now for a specialist in Boston because I would like more focused answers to my questions and I don’t feel I am getting anywhere near that causing me a great deal of confusion. I do realize answers are difficult but it is hot or miss with my time-limited, barely-available neurologist. Basically I’ve been told it’s autoimmune, no help for it, it will get worse have a good day. Not satisfied with that!
I appreciate the info you recommended and will definitely check it out.