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Any Adhesive Arachnoiditis members here?

Spine Health | Last Active: Jan 18 12:45pm | Replies (114)

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@amandajro

Hello @the4curtins and welcome to Mayo Clinic Connect. You have been through an arduous journey and one that, no doubt, has brought on frustration. I wanted to connect you with others who have had some level of experience with what you have shared, so you will notice that I have moved your post here:
- Any Adhesive Arachnoiditis members here?: https://connect.mayoclinic.org/discussion/any-adhesive-arachnoiditis-members-here/

Members such as @lynetteh1 @mmata and @stormcruzzer may be able to rejoin and share with you from their experiences.

I know "Pain Management" sounds like a scapegoat to some people, however, I have seen some really great things come as a result of a family member having gone through a spine and nerve health and pain issue, so I wonder if you've given it a go yet? I have to admit I wasn't very open-minded myself when it came to the appointment for my relative as I really was hoping for more in the way of answers, however, trusting the process has bode well for him so I wonder if there may be some help and relief in story for you if you explore that route?

Have you considered another hospital for a third opinion?

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Replies to "Hello @the4curtins and welcome to Mayo Clinic Connect. You have been through an arduous journey and..."

Thanks for reply. I’ve been in pain management for 10 years. It’s not perfect at times very frustrating especially when dealing with new practitioners. It’s the whole process of testing prescribing and filling prescriptions which I hate. But the drug attics line up every morning at my primary doctors office at 7:30 AM to get their Methadone! Takes me a week to get an appointment to see my own doctor he’s too busy “dose-ing” meth heads in the parking lot. We know gov. Pays him well for this “service”. That’s my frustration! We’re (real pain patient) ignored! I’ve taken your advice and actually have a new neurologist appt booked. I’ve also got new scans MRI’s booked! It’s been 4 years since anyone has looked at my “mess”. I guess it worth a go to see progression and give myself a better timeline for making decisions. I’ve been reading a lot of these stories. Im glad I have joined the group. Im grateful for your support!