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Lanreotide Manufacturers: anyone have experience with either?

Neuroendocrine Tumors (NETs) | Last Active: Mar 18, 2023 | Replies (53)
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@mimmy

I am new to this group and have been getting Lanreotide since May of 2022. I sometimes have loose bowels from the injection and bumps under the injection site. In addition, the needle hurts! All in all, I’ll happily take the treatment. I hope this helps.

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Replies to "I am new to this group and have been getting Lanreotide since May of 2022. I..."
Teresa, Volunteer Mentor | @hopeful33250 | Mar 6, 2023

Hello @mimmy and welcome to Mayo Connect! I'm glad that you found this forum. It sounds like NETs is a relatively new diagnosis for you.

I am a 20-year survivor with NETs. My first surgery was in 2003 and my third surgery was in 2016. My NETs were all in the upper digestive tract. I was asymptomatic. The NETs were found incidentally during a routine upper endoscopy. So far, surgeries have been the only treatments needed.

If you are comfortable doing so, would you share a bit about your journey with NETs? For example, how long ago were you diagnosed, what treatments (other than Lanreotide) have you had, were you having symptoms prior to the diagnosis?

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