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Neuroendocrine Tumors (NETs) | Last Active: Nov 29 1:22pm | Replies (429)

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@annct

Hello...I am a new member here and I am scared. And was recently diagnosed with neuroendocrine tumors of the esophagus and liver so far. My pet scan is scheduled for this coming Monday and I pray I don't light up like a Christmas tree.
The tumor on my esophagus is low grade, and the tumor on my liver is more advanced. I will have more information next week after pet scan.

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Replies to "Hello...I am a new member here and I am scared. And was recently diagnosed with neuroendocrine..."

Hello @annct and welcome to the NETs discussion group on Mayo Clinic Connect. As a newly diagnosed, this is a good place to be where you can get information and support from other members who are also diagnosed with NETs.

I look forward to hearing from you again. If you are comfortable sharing more, how was it that you were diagnosed? Were you having symptoms that led to scans or was this an incidental finding? Has surgery or other treatments been suggested yet?