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Pancreatic Cancer Recurrence after Whipple

Pancreatic Cancer | Last Active: Dec 2 2:33pm | Replies (90)

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@bethf

I went into full remission after chemo, though there was a diffuse area in the pancreatic bed that was of concern, but not clearly cancer at that point. I had 10 sessions of SBRT in April 22. Since then I have had two 3 month surveillance appointments with numbers good and scan not showing any changes or metastasis. However, in just the past 4 weeks I had new CEA and CA19-9 tests and tumor markers are increasing. I have been in remission about 1 year and have felt great--no problems. I still feel great, however, now tumor markers are trending up rapidly, scan is still stable, but I have converted from ctDNA negative (a good thing) to ctDNA positive (a bad thing) in just the past 4 months. I think surveillance with blood work and scans are often the next step. I have enjoyed being in remission despite the ongoing uncertainty, but now I am clearly having a recurrence and need to look at next steps. I will be asking about this in my own post on the forum soon.

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Replies to "I went into full remission after chemo, though there was a diffuse area in the pancreatic..."

Can you tell me what type of scans you had and how often. I do not secrete CA19-9 so I can't use that as a marker. My CEA is only slightly high and has fluctuated. If I go off of chemo I wonder what scan will be a accurate assessment when the tumor could be scar tissue and show no change.