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DiscussionNeed Surgery on Cancer & Just Found Out I Have MAC! Help!
MAC & Bronchiectasis | Last Active: Mar 21, 2023 | Replies (33)Comment receiving replies
Replies to "Busy, I hope you're doing good! Things have been so crazy here but I've been meaning..."
Hello Angela,
I'm so happy to hear that they are going to move forward with the surgery. While recovery isn't the most fun thing, it'll be a relief to have it over with. After my colon surgery, I was back to work in two weeks. I hope you'll be up and about in no time. You're on my daily prayer list - and in my mind many times a day. Just know that I'm sending healing, healthy thoughts.
It is possible to have several strains of NTM at once. At present I only have one, Kansasii. It's a slow-grower thankfully. But my body has cleared several others without the Big 3 for which I am eternally grateful.
Have you had genetic testing? I learned at NJH when I first went in 2011 that I am Alpha-1 Antitrypsin deficient. AAT is a protein made in the liver that protects the lungs. I evidently inherited this from my fraternal grandmother. I am not deficient enough to need infusion (as are some folks) but coupled with being severely anemic from the faulty staple in my colon, and because I am always digging in the dirt, I contracted NTM. For many years, probably the first 10, aside from a few episodes of severe hemoptysis, I had no symptoms. I still have very few - which is why I've been able to stay off of the meds.
And no, I've not heard of anyone going deaf or blind from the meds. But they can affect both your hearing and vision so it's necessary though to have regular visits to both the ENT and eye doc just to make sure the meds aren't messing with either one. My doctor had me do that before beginning the meds in order to get a baseline.
Your doctor sounds like a compassionate person so I trust that you're in good hands - both his and your surgeon's. I will continue to pray for the very best outcome, that you will feel the presence of both the God of your understanding and all of us on this website who are rooting for you.
Blessings to you!
Busy