← Return to Tapering off of Prednisone

Discussion

Tapering off of Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Feb 28 5:49am | Replies (313)

Comment receiving replies
@raven1955

Just my opinion but I feel that pain should be gone or nearly gone before starting to taper your prednisone dose. When you were first diagnosed you had a mountain of inflammation built up and typically it takes 15 to 20 mg to bring that inflammation under control, resulting in minimal or no pain. When I initially was put on pred I started at 15 mg and it was a miracle with the pain vanishing. However, my rheumy wanted me on an aggressive reduction schedule and within a month or 2 I had a massive flare up from taking too little pred. That time I had to move all the way up to 30 mg before the inflammation was knocked down and my pain was brought under control. Reduction should be a very slow path. If you suffer significant pain it means you're low on the prednisone dose. The one rule I learned early on is that the dose reduction should never be more than 10%. A bigger reduction invites a flare and after each flare you end up having to go to a much higher dose to get the inflammation under control again. Some rheumies (in my opinion) are hellbent to get a PMR sufferer off of pred too quickly. Yes, some of the side effect do suck but without pred I would have been an invalid. Do I miss what I used to be? You bet, but I've gained great appreciation that I can control this beast inside me and live a normal life - at a reduced level. PMR forum discussions are a very important source of information and support.

Jump to this post


Replies to "Just my opinion but I feel that pain should be gone or nearly gone before starting..."

Thank you, thank you, thank you. This is so helpful.

Just from a logical viewpoint, tapering while the pain is still bad does not make sense to me; the pain will only increase. If it is already strong, making it worse makes no sense.

To be honest, before prednisone, my pain was so bad that life would not have been worth living if it could not be treated. Prednisone made it bearable, but so far my life is seriously impaired. I was diagnosed on Feb 3, 2023, so its all new to me.

My rheumatologist has made statements about tapering that really bothered me, but I've learned now that I have to be VERY direct to make sure my concerns are heeded.

This forum, and comments like yours are extremely helpful.