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@123carpediem

Hello:
Life can be really changed in the context of self perception. The awareness of who we are on the inside of ourself is sacred. Changes abruptly to these things are lifelong and dynamic. I have gone through and am still going through a similiar struggle like your husband. It is hard to feel, love, think, and many other things. It is so upsetting to have awareness for the lack of awareness. It can cause the deepest of psychological pain. It affects everyone I interact with. Mostly a burden upon us all. I try to have dignity and succeed only sometimes. The man you love is still there. He may be trapped on the inside of himself for very complex reasons. All we can do is our best. At times when our best isnt " good enough" , we must have thankfulness for when it actually was. My affectations have been hard on those around me at times. I have to double my effort just to make others smile. It is exhausting.
This is what my experience has been like superficially. If you ever need to talk, I am here. Best of luck in all that you do. Thanks for sharing!

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Replies to "Hello: Life can be really changed in the context of self perception. The awareness of who..."

Thank you for your personal note. I thought I would hear from another caregiver but am gratified to hear your point of view. I believe you are right in what you say about the person I knew being trapped inside. On some level he is beginning to understand too, and we are trying to come up with new ways of living together that doesn't freak both of us out = : )
I wish you well on your journey!
Athena