← Return to Tapering off of Prednisone

Discussion

Tapering off of Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Feb 28 5:49am | Replies (313)

Comment receiving replies
@lizferrier

Hi I wonder if you were on an adequate dose to start with if you still had significant pain. Perhaps see rheumatologist for guidance? I started prednisone treatment for PMR in October 2022 - 25 mg daily & luckily that worked for me & eliminated most of the pain and let me return to normal life. After a couple of weeks I reduced the dose to 22 mg daily and then a couple of weeks later 20 then 17.5 etc. When the dose was down to less than 10 mg the pain returned and I was advised to go back to 10 mg for a couple of weeks and then try tapering again. It took a while but am now only having 7.5 mg daily and hope to continue tapering off the Prednisone. Will see doctor again soon to check that this prolonged use of prednisone is ok. Some people do have to stay on it longer than others.

Jump to this post


Replies to "Hi I wonder if you were on an adequate dose to start with if you still..."

Good comments, thank you.

I'm in regular contact with my rheumatologist and PCP, and have suggested moving to 25 mg of prednisone/day. However, I was only diagnosed on Feb 3, 2023, so I think my rheumatologist wanted to wait for a few weeks to see how I responded to the 20 mg/day I am taking now.

Well, a few weeks have passed, and I've just just had my 6th blood draw. The results are coming in. It appears my white blood cells and inflammation markers stabilized quickly after starting the 20 mg/day prednisone a few weeks ago, but have not changed further since then. So they are still quite high, but no longer extraordinarily so.