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Trigeminal neuralgia: What helps stop the pain?
Neuropathy | Last Active: Jun 18, 2023 | Replies (91)Comment receiving replies
I have had Trigeminal-Neuralgia since 2005. It started small. Which it came on short shocks. Then it increased in my face longer and longer. My 1st neuro DX me in July 2006 MS and TN. I thought I went in denial and in 2008 I had a facial shock over an half hour. My face was like the art the scream. Luckily my neuro put me on carbamazepine which took a half hour to work . My shocks started on The right side of my face. Which over time it went to my left side. Now it's on both sides . And of course my carbamazepine stopped working in 2022 at 1200mg. Spent 3 months not eating or drinking or talking. And then a hospital visit for fluids and second neuro tried oxcarbazepine. Which I am on 1200mg. Neuro said I will have to Try procedures next. I saw a neurosurgeon and he said it will come back. I hope this medication works
For a long time.
I wish I had a answer. I know over time I see medications and procedures work differently on people . I don't even have a answer for myself.
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I am so sorry for all the pain you are suffering. I am new to this subject, but I started out with a bang. Like you I suddenly had this terrible pain in my left jaw. I could not open my mouth, or eat. If my cheek touched my jaw, there was immediate pain, so could not talk. Worst of all I could not get a Doctor Appointment for one month. My G.P. tried a number of medications, but for one reason or another I could not take them. I was on Codene and Tylenol. Very little help. Finally saw a Neurologist, and he started me on Pregabalin 75 mg, three times a day. Miracle, of miracles it worked. We have had to try and reduce the amount, because I gained 10 lbs. the first month. I am now on 50 mg twice a day. Works well, but I still have minor problems when it is time to eat. I paint the gum area with Ambe sol (baby teething medication) and this temporarily solves the problem . I don't know if any of this is a help to you, but I will pray that it might.
Gina5009