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PNET Surgery: My recovery journey

Neuroendocrine Tumors (NETs) | Last Active: May 22, 2023 | Replies (72)

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@outlawcancer

Good evening everyone this is day 4 update. I am still at the hospital recovering from the surgery. I didn’t realize how major of a surgery this was. Please don’t be alarmed, but you don’t realize until you every aspect of this surgery into one piece how big this becomes. For example, we don’t realize how often we use our stomach muscles to perform daily functions, standing sitting etc. my surgery was laparoscopic therefore my stomach is absolutely sore and painful. Then you remember the rest of the surgery , removal of your spleen and pancreas . But don’t forget the layers Dr’s have to go through to get to these organs. Please mentally prepare yourself for all of this, you need it, and it’s good to be educated so you know what to expect. I am still in pain and those levels fluctuate daily sometimes 3/10 all the way to 10/10 pain. Pain medications have been my savior without it i don’t know where id be…. Today was the first time since surgery that I was able to pass gas and have clear oily bowel movement. My drain is still in place and the color has changed from dark red to bright red now I’m getting a clear liquid. Nurses say the clear color is what we want to see in order to remove the drain tube also volume as well. I’ll keep y’all informed tomorrow.

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Replies to "Good evening everyone this is day 4 update. I am still at the hospital recovering from..."

Thanks again for your continued updates, @outlawcancer. Yes, this type of invasive surgery is difficult, to say the least. My first two surgeries were invasive, and I also had the NG tube. During that time, I could only have ice chips and was without food for about 5 days. It is not easy, but once you get beyond that point, and begin to eat soft foods (think small quantities) it really does get better.

Try your best not to get too impatient, it will get better. It really does take time, though. I look forward to hearing from you, so please keep posting!