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Severe Progressive Neuropathy

Neuropathy | Last Active: Feb 28, 2023 | Replies (9)

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@illac

I truly believe that it was a medication but they will never admit to that but I woke up one morning and I was just numb from my waist down and I would get like sharp pains in my legs, feet, hands and arms. I thought after a while it would go away. So I scheduled a doctors appointment where they had to shock me with this machine and that’s when I found out I had severe progressive neuropathy. Mentally it has turned my world upside down because it’s like trying to walk again and balance so you won’t fall and though they say most diabetics get this I don’t have diabetes. They also informed me that there is no cure. For the longest I was just like how do I cope what do I do. So constant prayer is all that I have found that helps me through it.

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Replies to "I truly believe that it was a medication but they will never admit to that but..."

@illac, While there is no real cure there may be a treatment out there somewhere that will provide some relief and a better quality of life. The Foundation for Peripheral Neuropathy has some good information here - https://www.foundationforpn.org/living-well/.

There are some medications and cancer treatments that can cause neuropathy. What medication and condition were you being treated for that you think may have caused the neuropathy?

Hello @illac ,
I certainly hope that you get the answers you deserve as to why this happened to you , especially the sudden onset.
From my end it feels as though the neurologists see lots if this , and unless there is a medical reason for the symptoms, they throw you into the idiopathic neuropathy pool, where there are no answers or solutions.
Prayer has certainly been a constant for me and I will add you to my prayer list.
I wish you well in your journey