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Pancreatic Cancer Recurrence after Whipple

Pancreatic Cancer | Last Active: Aug 29, 2023 | Replies (76)

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@roseisarose

Are you u/pancreatic survivor on reddit pancreatic cancer site? If so, can I personal message you and tell you about my experience and get some advice. You will understand why I hesitate to share here when you read what I have to say.

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Replies to "Are you u/pancreatic survivor on reddit pancreatic cancer site? If so, can I personal message you..."

I was diagnosed September 30,2021 with Stage 4 pancreatic cancer that covers my major blood vessels. I was stage 4 both because of location and because of liver metastasis that was too small to biopsy. I took oxaliplatin for 10 rounds along with campostar, leukovarin, and 5fu. I have continued on and am still on the last three chemo agents. I got pretty severe neurological dude effects from the oxaliplatin that have gradually improved over the last year. I have had two PET scans that show the tumor has died in the pancreas and the liver lesions are no longer there. My Ca19-9 is 24. I am continuing on chemotherapy. My oncologists are researching what to do next. Has anyone gone into full remission from chemotherapy? What was your treatment plan?