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← Return to Severe Progressive Neuropathy
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Hello @illac, Welcome to Connect. I can imagine if your symptoms started overnight that it would turn your world upside down. Mine gradually progressed starting in my toes over 25 years or so until I finally sought a diagnosis to find out what kind of nerve damage I had and what could be done about it.
Do you mind sharing more about your diagnosis and symptoms?
Replies to "Hello @illac, Welcome to Connect. I can imagine if your symptoms started overnight that it would..."
Hello @ johnbishop,
I am new to this site but
certainly not new to the symptoms of neuropathy.
I too started with the burning , tingling sensation in both feet about 25 years ago that has gradually gone to numbness , paresthesia in both feet and ankles. But my symptoms are positional , only when sitting or lying down. I’m fine when I’m upright and moving.
I would be interested in hearing about the outcome of your research to find out why you have this and what treatment you have begun.
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I truly believe that it was a medication but they will never admit to that but I woke up one morning and I was just numb from my waist down and I would get like sharp pains in my legs, feet, hands and arms. I thought after a while it would go away. So I scheduled a doctors appointment where they had to shock me with this machine and that’s when I found out I had severe progressive neuropathy. Mentally it has turned my world upside down because it’s like trying to walk again and balance so you won’t fall and though they say most diabetics get this I don’t have diabetes. They also informed me that there is no cure. For the longest I was just like how do I cope what do I do. So constant prayer is all that I have found that helps me through it.