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Sjögren’s Syndrome: how do you manage the symptoms?
Autoimmune Diseases | Last Active: Apr 10 8:16pm | Replies (158)Comment receiving replies
Hi Doreen, I removed your personal phone number. Connect is a public forum. We recommend sharing personal contact information using the secure private message function. I might also add that by sharing here in the forum, you are connecting with several people where all can benefit from group support and your valuable experiences having lived with Sjogren's for so long.
What tip would you offer to someone who has just been newly diagnosed with Sjogren's?
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This disease is so complex, many symptoms that come and go. Your friends , family and coworkers can’t begin to understand what you are living with. You should search for a Rheumatologist connected to a large research teaching institution. I’m very fortunate mine is st Johns Hopkins Hospital. He has been my doctor since my first symptoms of Raynaud’s. He has researched treatments for me as new symptoms have evolved. And as we all know, there are no cures , just treatments to help .