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Sjögren’s Syndrome: how do you manage the symptoms?

Autoimmune Diseases | Last Active: Apr 10, 2024 | Replies (158)
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@drolker

Hi Eileen! Sorry to hear about your Sjogrens symptoms.I have had Sjogrens for about 25 years.
Easier way to communicate.
Doreen

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Replies to "Hi Eileen! Sorry to hear about your Sjogrens symptoms.I have had Sjogrens for about 25 years...."
Colleen Young, Connect Director | @colleenyoung | Feb 27, 2023

Hi Doreen, I removed your personal phone number. Connect is a public forum. We recommend sharing personal contact information using the secure private message function. I might also add that by sharing here in the forum, you are connecting with several people where all can benefit from group support and your valuable experiences having lived with Sjogren's for so long.

What tip would you offer to someone who has just been newly diagnosed with Sjogren's?

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eileenb1022 | @eileenb1022 | Feb 28, 2023

Hi Doreen,
thank you. i rescheduled my rheum appt for monday morning. its early so im staying in a hotel the night before to be closer. my body aches i have no idea if its sjorgens related, fibro or something else entirely but it hurts like hell and im just hoping he does some kind of imaging. i been trying to get a mri since sept. its crazy i have had to suffer like this.

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