I’m on here to research for my son who is also 38 years old. After sudden onset of his muscles locking, heart pounding, skin burning, wet skin feeling, going to ER, primary doctors prescribing antidepressants, we finally got to a neurologist which ordered mri snd skin biopsy punch test. It’s been 18 months since diagnosis.
My son was diagnosed with SFN. He is very athletic and is now suffering with the constant leg muscle twitching, balance issues, skin feels wet at times, or has no feeling most if time. He will not take drugs after being shoved the antidepressants. He also has constant acid reflux but has found that all the products like Prilosec and omezeprole seem to increase SFN symptoms. He did not have covid vaccine, but did have 2 small bouts of covid. Also when this started it was like “a bomb went off” in his body. He has been struggling with it ever since. Stress definitely has an impact. Also he lives in an area without good medical access without plane trip. He has tried vegan diet, then went to extreme opposite of meat only which actually felt a bit better. Now is doing a well balanced diet. Diet doesn’t seem to have huge impact either way.
He tried higher doses of vitamin B, not sure which one but his labs said all levels were fine.
Has tried low dose naltrexone but gave up after getting to 2.5 mg I believe. Didn’t help much.
He has tried Browns gas. He felt like he had some relief but us quite a setup and investment in the machine and time on the machine.
Balance issues are his current challenge. He says he feels like he is getting off a boat with sea legs upon standing. It’s preventing this athletic young man from running and the balance is a stressor.
His neurologist has said she has seen many similar cases and sometimes it has disappeared as fast as it came on. This gives us hope.
Please keep trying to investigate treatments in hopes we can someday come up with “idiopathic” cure. Very frustrating that neuropathy doesn’t seem to peak curiosity of more researchers as to why it suddenly appears.
I wish you well and pray for all who have neuropathy that someday we can find you relief!