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Kari Ulrich, Alumna Mentor avatar

Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: Jun 29 11:39pm | Replies (1268)

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Profile picture for djw4u @djw4u

I am so sorry you are dealing with horrible pain too and had a negative experience.

Honestly it has been several ER visits, multiple doctors, what I would say misdiagnosis and a lot of pain for my friend. She was finally referred to a MD doctor after hearing a similar story of another Amish young lady. It was several months of waiting for that appointment, a very long trip, but she did finally get some answers and recommendations for further tests to be done at home. (One of those was the plexus block). She now found and has an internal medicine doctor that has been very compassionate and has been helpful in trying to refer to a loser vascular doctor. Thanks to MALS PALS fb group we have stories and doctor recommendations! If you aren’t on that group I would highly recommend it as it is active and filled with friends going through the same thing. It gives hope! You can ask questions!

I hope that you can find help soon. ❤️

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Replies to "I am so sorry you are dealing with horrible pain too and had a negative experience...."

(A closer vascular doctor not a loser…..auto correct and me not reading through before I hit send)

I hope the best for your friend, please give her a hug for me. I’ll try and keep you posted on my future appointment too

I’m curious if your friend has had blood pressure problems too?