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High Dose Vitamin D: Is it safe?

Pancreatic Cancer | Last Active: Jul 8, 2023 | Replies (18)

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@pendesk8

I have also dealt with a lack of interest from my oncologist.I have had to fight for Gene testing and looking for clinical trials,she has been no help at all.I am in my 9th month of fighting.Doing ok so far.Through the gene testing I found out that I have a ATM gene mutation.Sloan kettering is doing a clinical trial for that mutation.I have been trying to get in touch with them,its not easy.We have to be our own advocates in this fight.I will continue to fight as long as possible.I was a 70 year young active female.Presently on the flurocil regime.2 day pump every other week,UGH but doing ok.

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Replies to "I have also dealt with a lack of interest from my oncologist.I have had to fight..."

I have been seen at MSKCC. I read through the oncologists Bios because I have the BRCA gene. I found one of the oncologists who had an interest in BRCA in pancreatic cancer, David Kelsen MD. I referred myself to the doctor without any difficulty. If you have an oncology consultation, the oncologist can refer to the clinical trial and of course review all of the treatment. I can speak highly of the way I have been treated at MSKCC.