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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Mar 19 8:46pm | Replies (2901)Comment receiving replies
Coleen. I have neuropathy but not sure what itis called. I have numbness in hands feet legs arms and-some in the stomach. The most trustrating thing is I cannot get my doctors to agree what is causing it. I am a lung cancer .
Survivor . I was diagnosed in November 2011. I have been on two different targeted therapies and have radiation and chemo as well. Through blood tests they found an autoantibody called LGM. I have had multiple tests done to see jif this is causing the neuropathy. Has anyone else been diagnosed with this autoantibody? I am trying to get an appointment with Mayo to see what their Doctors thunk is causing this. Ii am looking for a Doctor that would be a good fit with all my problems. Oh I forgot to mention I was diagnosed with Lupus in 2020. Thank you for allowing me to join the group.
Replies to "Coleen. I have neuropathy but not sure what itis called. I have numbness in hands feet..."
What antibiotics did you take in recovery. I have heard ciprofloxin can cause peripheral neuropathy.
it id caused by various things-have you taken any anti-psychotic drugs like haldol or anything else-what about your psoas muscle in you spine that I beleive can tigten you peripheral nerves in those area-suggest you see a pt who specializes in neuropathy to learn exercsies 3x per day and also get a neurological exam-you have got to be your own advocate Colleen-god bless you Mike storman-advocate for the handicappedd
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Hello @sal99, Welcome to Connect. Congratulations on being a lung cancer survivor since 2011. One of the side effects of treatments is unfortunately neuropathy which can impact your quality of life. There is another discussion that you might find helpful:
--- Chemotherapy-induced neuropathy: What helps get rid of it?: https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy/.
One of the best things you can do to help yourself is to learn as much as you can about your neuropathy condition and what treatments might provide some relief. Here are a couple of sites that provide a lot of good information on neuropathy.
--- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview
--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/.
You may also be interested in this related discussion:
--- Anyone with lupus or SLE: How do you manage your condition?
https://connect.mayoclinic.org/discussion/sle/