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MALS and lower abdomen chronic pain

Digestive Health | Last Active: Jul 11, 2023 | Replies (19)

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@vlk420

So sorry to hear about her findings, who, what, and where did she get treated? Can you tell me if she was diagnosed with all 3 at one time and with only 1 Test? I hat a CT w contrast a couple weeks ago that says Nutcracker Syndrome but since I’m not able to see any vascular surgeon till April. I think I have DVT too in my left leg, but they still haven’t been able to rule out, further test needed apparently, my
regular doctor doesn’t know anything about any of this stuff, and I was horrified after being taken into the ER after my husband called 911 only to be negligently taken into be told by the ER doc I would have to follow up without so much as an physical exam,. EMT who took me by Aid car told ER I was experiencing Chronic Back and sciatica and to would need to see a physical therapist. They wouldn’t listen to me and my husband. I feel like I am going to die and nobody has the experience to know what this is, and there is No way I will go to the ER after what happened a couple weeks ago, I’m still traumatized seriously 🧐, I am getting worse every day now, the pain is unmanageable, I am bedridden , and have filed a amendment to ER negligent visit. Thank you for any good advice to help me

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Replies to "So sorry to hear about her findings, who, what, and where did she get treated? Can..."

I am so sorry you are dealing with horrible pain too and had a negative experience.

Honestly it has been several ER visits, multiple doctors, what I would say misdiagnosis and a lot of pain for my friend. She was finally referred to a MD doctor after hearing a similar story of another Amish young lady. It was several months of waiting for that appointment, a very long trip, but she did finally get some answers and recommendations for further tests to be done at home. (One of those was the plexus block). She now found and has an internal medicine doctor that has been very compassionate and has been helpful in trying to refer to a loser vascular doctor. Thanks to MALS PALS fb group we have stories and doctor recommendations! If you aren’t on that group I would highly recommend it as it is active and filled with friends going through the same thing. It gives hope! You can ask questions!

I hope that you can find help soon. ❤️