I was diagnosed in August of 2022. I had 6 chemotherapy treatments and 37 radiation treatments. I had to wait 3 months for my PET scan - tumor shrunk but I still have it as well as pre-cancerous cells on the opposite side. I’m in tremendous pain. I am supposed to have surgery March 20th and hoping to have it moved up. This cancer is very rare and would wish there were more forums where we can share experiences.