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Diagnosed with MAC but not being treated

MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (100)

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@bellsina71

I know this is an old post and I don't know if you're still on here but I just couldn't believe that you had an 8.5 cm cavity! I have a 3.2 CM cavity and I thought that was big! Anyway if you're still on here can you let me know how you're doing? Thank you!

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Replies to "I know this is an old post and I don't know if you're still on here..."

Hello. Thank you for reaching out. Yes....my cavity actually got to a little over 9 cm big. I've been on the Big 3 antibiotic treatment (Ethambutol, Azithromycin and Rifabutin) for 5 years now. I also started the inhaled Amikacin in February 2019 and it has been a game changer. My cavity has shrunk to 4.5 cm with the treatment. I also nebulize Levalbuterol then 3% Saline Solution that is awesome for "lung clearance".
What treatments are you on?