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Incontinence Improvement with Pelvic PT?

Prostate Cancer | Last Active: Mar 12, 2023 | Replies (11)

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@web265

Sorry to hear your not happy with your progress.

It's really difficult to compare and contrast this as one of the big factors would be how large a margin the surgeon had to take on either side of the prostate. This can have a big effect on your ability to regain continence and how fast you manage to do so. My guess everyone is a little different.

Those numbers don't mean anything to me as I didn't even know there was a test. If I had....I might have tested.

I'm almost 18 mos post op now. I made significant improvement early then the rest was slow. So, I would wear a pad on and off for the first couple weeks, but there were things that would cause leakage for a couple months. Sneezing, coughing, passing gas, bending over in certain ways. It was a few months before I could run again. (that one had me worried!) Even today there can be little slip ups, hard labor comes to mind (recently helped my brother in law move). The heavy lifting caused a little.
Hopefully the PT will show more improvement for you soon!

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Replies to "Sorry to hear your not happy with your progress. It's really difficult to compare and contrast..."

Hi web265

Since I began keeping records on December 7 I have done about 10,000 kegel squeezes building from 3 second hold to 15 though sometimes 20 and the longest I can hold is about 40 seconds.

Its important to use the correct technique and my PT gave an iPhone app with video demonstrations.

My PT has me voiding every hour to "train" my bladder to expect a duration. When this is "dry" I'm to move to 90 minutes or two hours. Dry at one hour is 70 or more days out without sudden improvement.

Being a compulsive numbers guy records are average daily grams and the three day moving average grams, both over a 24 hour period.

Three day running average: 342 started at 522 19 days ago.
Daily average: 406
Average grams per hour: 17
Highest 24 hour: 613, Lowest 213.
I use a postal scale.

I've tried to post the past 19 days showing a continuous improvement, albeit too slow in my view.

For my hoped for sudden improvement I am looking for certain food, acidic in particular, that may affect the bladder. Its a process of elimination. So far ID's, sugar. Apparently okay caffeine and red pasta sauce.

Being this quantitative is my way to avoid that hopeless feeling and becoming depressed with this aspect of recovery.

Anyway, this is what I'm doing. Do not stop kegels.