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Struggling with making an osteoporosis treatment decision
Osteoporosis & Bone Health | Last Active: Jun 4, 2024 | Replies (661)Comment receiving replies
I am seeing a doctor in the Yale Bone Center group. Dr. Bergwitz is very thorough. I've been on Tymlos for almost 5 months and just stopped because of the side effect. We think they may be caused by Tymlos since others have reported the same. Bouts of extreme fatigue, loss of appetite and weight loss. He immediately ordered labs to make sure I wasn't leaching calcium.
I'm looking at alternative therapies including a Bone Fit certified PT pro. None in Fairfield, but one in Stamford and others further north and east.
Replies to "I am seeing a doctor in the Yale Bone Center group. Dr. Bergwitz is very thorough...."
@thinwhitewoman I restarted Tymlos at two clicks and moved up. I remained on 6 clicks out of 8 on the pen for quite a long time, then 7 clicks and only for the last two months have done the full 8. The full 8 is giving me fatigue, dizziness and I think migraines are worse. Below 8, I have no side effects at all. It's weird that that one click makes a difference.
Have you tried a lower dose? My doc was okay with 6 clicks and delighted with 7. I ramped up over a couple of months. I was really determined to take it. I have a lot of fractures!
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Thinwhitewoman, I love your call name! I also live in CT and am struggling to find the right doctor to help me. My PCP has referred me to an endocrinologist, however, my appt is August! I wonder if the Yale Bone Center is backlogged also.
Do you find the Yale Bone Center group beneficial? How did they determine to put you on Tymlos? Did they do bone biomarker tests prior to putting you on meds? May I ask your T scores?
Since you've stopped Tymlos are you stopping osteo meds altogether? Who is a Bone Fit certified PT... a physical therapist?