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@julius

kanyd, my husband has Devic's Disease(NMO). He has 2 spinal lesions, one at the base of his neck, which makes it difficult and painful to use his hands. And one on his lower spinal cord, he is in a motorized wheelchair, he can't use his legs to stand on. He can only use them only to transfer on a transfer board to bed, car, shower,etc.He was diagnosed March 2016 with neck lesion diagnosed Dec. 2017 with lower back lesion. He is taking carbamazepine, prednizone, he does plasamaphersis every 6 weeks, and retuxin twice a year. But like you, his vision is not affected which makes me wonder bc his eye dr said his vision is perfect. Right now he is not getting worse but he's not getting better either. He says he feels like he might not be able to use his hands much longer. At first they thought he might have transverse myelitis. i wish you well. I'll update if he has any changes. Marie

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Replies to "kanyd, my husband has Devic's Disease(NMO). He has 2 spinal lesions, one at the base of..."

@julius Hello Marie and welcome to Mayo Clinic Connect.

I am sorry to hear that your husband is dealing with so many issues. I can see how limiting this is to his daily activities. He is so fortunate that you are there and looking out for him and these health issues. It sounds like you have a lot of questions regarding his diagnosis and various symptoms.

Have you considered getting a second opinion from a multidisciplinary team like Mayo Clinic or a university medical center?