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Undiagnosed Leg Pain

Chronic Pain | Last Active: Feb 28, 2023 | Replies (12)

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@rwinney

Hello @rennie. I'm sorry for your pain, and understand where you're coming from. I guess my question for you is, are you still in a diagnosis phase, or have you (or your doctors) settled on the fact that you have chronic conditions of back and left side pain, and neuropathy? Figuring out whether your situations are acute is the first step, then quite honestly, if they are not, it becomes about working on acceptance and a chronic pain-management game plan.

You mention that you don't have symptoms. Do you mean some of the CSS symptoms described in the video? Maybe you don't have a plethora of symptoms, but you do have symptoms. I went to Mayo's Pain Rehab Center and was joined in class by a variety of chronic pain folks. Granted, we did not discuss our symptoms (that is considered a pain behavior), but Dr. Sletten made us very aware that while some may have less or different symptoms than others, we were all in a similar place of needing a plan to help achieve a better quality of life. Some people, like you, simply had surgery and were left with chronic pain.

Is the Mayo Pain Rehabilitation Center something you might consider looking in to?

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Replies to "Hello @rennie. I'm sorry for your pain, and understand where you're coming from. I guess my..."

Thanks for your insight. I think I am still in the diagnosis phase as it relates to my back. See the Neuro Friday. Hoping it is not chronic and can be addressed. Not a big fan of surgery. Right now I take Gabapintin daily and Tramadol as needed. The latter has been small dose, about 50mg a day lately. Just do not want to have to manage with meds. I do PT, Yoga, strength exercises at gym and have started with a massage therapist. If I have to go to pain management only, it will be a hard acceptance. I feel like it is giving up on myself. I keep moving, but my PT says all the core strengthening in the world is not going to fix my disk issue. I live in Oregon and suppose we have pain clinics here. If that time comes, hope I can find one as good as yours. I really do appreciate your perspective! When people ask me about pain, is it better not to talk about it? My friends say they can tell. I hate that! Rennie