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@5thnecksurgery I see you are a new member and welcome to Connect. I understand the dilemma you face after 2 surgeries and still being in pain. I think another opinion elsewhere with a top surgeon is a good idea.
Your surgeon makes the point that nerves take a very long time to heal. New imaging could revel if anything on the hardware may have been displaced or could be a source of pain.
One other source of pain can be from scar tissue from the surgeries that pulls on the fascia. There is a therapy called myofascial release that can loosen the tight fascia. With your extensive surgery, the scar tissue involvement could be a lot in triggering your pain. I have done a lot of MFR work and it has really helped me.
Here is a discussion that you may want to read through and meet other members who have used
MFR — Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/.
Have you heard of Myofascial Release Therapy?
Replies to "@5thnecksurgery I see you are a new member and welcome to Connect. I understand the dilemma..."
I have a different question. I am taking Lyria for nerve pain. I guess it's helping some but now my hair is falling out. They think it's just from surgery and I understand that does happen but they don't know my history. I was prescribed Topamax 7 years ago for migraines and it made my hair fall out. I actually had to take the hair in a baggie to show them before they would believe me. So I took myself off that medicine gradually and started spironolactone which has helped. I'm still on spironolactone but my hair is falling out at the rate it was before. I'm worried before Lyrcia is a seizure medicine and that's what Topamax was for. I guess I need to make an appt. Have you ever heard of this?
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No I have not heard of MFR therapy. Thanks you so much for your reply and for the link on MFR therapy. I will read the thread that you have linked. I am willing to try anything to ease the pain, numbness and tingling! At one point I thought that I was going to lose the use of my right hand!