← Return to Excruciating chronic left side neck pain plus lumbar issues

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@jenniferhunter

@ab6540183

Alfred, I am going to ask you an important question, and if you do your homework and honestly work toward finding your truthful answer to this question, it can help you get past the anxiety and the fear. The question is:

WHY are you doing this to yourself?

In other words, identify the things you are doing, your thinking patterns, and how does it relate to your anxiety and high blood pressure? What is it that you believe about your spine condition that is triggering you, and WHY DO YOU BELIEVE IT?

One path to answer this question is to think about times in your past when you felt similar anxiety, and why did you feel that way? What happened? Where you in physical danger? Did you not feel like you were getting support during a fearful event in your life?

Believe me, I have been there too, and the day I asked myself these questions was the day I began to unravel all the reasons that FEAR WAS CONTROLLING ME, and in finding those connections, I deprogrammed the fear. I used to fear pain so much that I passed out anytime I got an injection. All it took to push my FEAR button was for a surgeon to tell me that I had significant spinal cord compression and I needed surgery as soon as possible, and then with his arrogance, he didn't have time to answer my questions, yet he was asking me to sign up for his surgery. Later on, he continued sending me quality of life surveys for 2 years sniffing for business. His position as a surgeon elevated his importance and he had been in a magazine for his fashion style and elegance unrelated to his medical career.

After that, every morning when I thought about myself needing spine surgery, my blood pressure shot up and my heart raced. I had to learn to stop having panic attacks because I knew I was in trouble and needed to have my spine condition fixed which could only be done with surgery.

Consider this..... the fear response is learned and remembered by your brain. Every time your brain sees a similar threat, it goes right to the fear response that it knows. That is a survival reflex that is meant to get you out of danger as soon as possible. You were not born with this fear and anxiety. Babies don't worry about what will happen. Somewhere along the way, you learned to be fearful and accepted fear into your life without thinking about it. Here is your chance to think about it now and deprogram it, and if you do this right, it will change your life. That was my greatest lesson in facing my biggest fears.

Fear will increase pain a lot. There are people who can endure pain while using their mind so they do not feel the pain. How do they do that? If I had to guess, I would think they have severed the link between pain and fear.

I think you know how others view you when you say that your spouse and doctors are "not supportive." Here is your quote: "I have been bombarding the doctors with phone calls and emails nearly every week. They are not being supportive."

What happens when you keep repeating everything all the time to everyone over and over?

People stop listening including doctors.

If you keep telling surgeons your pain is at a specific level, you are diagnosing yourself and in effect, you are telling them how to do their job. A surgeon has spent years learning medicine and may be offended by a patient who keeps doing this and making demands. The surgeon's job is to figure out if there is a structural reason for your symptoms, and if it is something they can fix. Often, they do not promise to cure pain because pain can be for many reasons out of their control. If they think your pain is coming from something else or if it is in your head, what can they do to help you? Nothing..... except refer you to pain management.

Surgeons jobs are stressful and they are overworked. As you say, there are not enough surgeons to meet the demand in your country and the medical system is flawed, but it is what it is. This is why you need to be the best patient you can be. Be the patient that everyone wants to help.

What do you think your doctor thinks if you second guess them by looking things up on the internet and you tell them what is wrong? It's true that doctors can miss things. In my case 5 surgeons missed the complete diagnosis. When I found the medical literature that described my condition, I posed it as a question and asked the new surgeon if they thought my case could be like this case in the literature? It's an important difference in the way you communicate. Let them be "the BRAIN" and you are there to learn from them; not to tell them what you think is the cause of your problem. Describe your symptoms instead.

I believe that you can lower your pain response and your anxiety if you commit to doing that. Working with a counselor can help a lot. Decide what it is that you really want.

You said, "I am currently in hell. I have been up all night, it is 5:13 am in Melbourne, I took all my tablets but they are not managing the pain at all."

The choice is yours. Either stay in your current mode, adrift without a plan and hoping to be rescued, or take steps to help rescue yourself and change your life. You are the only one who can do that. Make an informed choice so you can answer honestly to yourself WHY you made the choice. A journey begins with a single step.

Jennifer

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Replies to "@ab6540183 Alfred, I am going to ask you an important question, and if you do your..."

Hi Jennifer,

how are you?

Thank you for your reply.

You said: WHY are you doing this to yourself?

I really do not know why I am behaving like this.

All I know is that I have been with these doctors since November 2022 and have been on pain medication since, but in the mean time, my condition has been getting worse due to daily headaches, earaches, jaw aches, feeling light headed, pain/tightness/numbness of my toes, feet, legs, calves, lower back, hips, bilateral neck pain, shoulders pain, arm pain, hands and fingers pain, stereo tinnitus.
The pain is destroying my quality of life, my doctors don't explain the seriousness of my condition, feel fine about this and my diagnosis is being delayed.

I suppose that I am not able to accept this amount of pain and feel nostalgic about the time I was fine. I want to get back to some normality and control of my life.

The problem is also phycological. The pain affects me in a negative way and causes anxiety. I have been an electronics technician and IT administrator for many years therefore I have a very analytical mind and am used to find fixes to computer problems.

The medications could also be affecting my thoughts. Recently I increased the opioids to two tables a day when I go to sleep.

I keep reading that untreated radiculopathies can turn into neuropathies which eventually could turn into paralysis, MS and fibromyalgia.

I don't have a social life anymore, no one calls me to see how I am going not even my brother.
Whenever I call someone to talk no one picks up.

I have lost my independence. Before I used to organize everything on my own not relying on anyone and now I have to depend on my doctors, on my wife to go to appointments because I am not able to drive to either pain or being under the effects of drugs,

I am currently doing TEAMS online sessions with a psychologist, but the appointments are few and far in between.

You could say that I feel lost, confused and I don't have enough information to make a proper decision. In my case I have too many nerve issues (neck, upper thoracic spine, lumbar spine) and feel that I wouldn't be a good candidate for surgery. Then there is a fear of losing flexibility with fusion and no guarantee the the pain will go. I have friends that recovered with stretches, physiotherapy, ozone therapy, hydro therapy etc.

When I have been under extreme anxiety in some occasions I have been crying, banging the walls, yelling to release all the tension that has been bottled in for a long time.

I also have fear of living life like this for a long time or even departing early from this planet.
I want to be around to be there for my 4 sons, to see my three grandchildren grow etc.

The day after my osteopathy session, I was at my computer, and my left arm started to shake on its own. I also felt some throbbing departing from my right shoulder moving downwards.
The throbbing is still happening today from time to time. I never had these issues before.
These sensations put me in fear unfortunately because I do not understand what is going on,

Best regards

Alfred

Hi Jennifer, can you please explain to us why doctors are not always listening to what we are trying to tell them, they are not always right and it’s that very reason why they miss potential life threatening conditions. I would be a lot worse off if I didn’t be more pro bono with the rare conditions I’ve had to help them make the correct choices for me. I have walked out of more than one doctors visit from their unpleasant and unprofessional attitude.